Spreading Awareness

I decided a while ago that I would push to spread awareness about Reflex Sympathetic Dystrophy, aka, Complex Regional Pain Syndrome.

Because of my decision, I am now apart of many different social networking sites. As it stands, I feel completely overwhelmed and wish that I could set up one site to update all groups and messages, etc.

However, until that happens, I will still keep going into each one. I am checking to see if I have made just one more friend, or if my old friend needs words of encouragement, and yet another friend needs to find something and I help them look for it online. At times I withdraw into a shell and I don't visit any of my sites. I am not sure if it's the RSD messing with my head (pain), all the medications, or both.

The main purpose for this writing is: I had signed up for Window's Live Spaces ( www.jesdenm.spaces.live.com ) A man came to my page and said hello. I went to his page and found an outlet for a poem I had written. I contacted Mitch and asked if I could display my poem on his site, like others are. He gave me permission. Since posting my poem, I have received numerous comments thanking me for making them aware, apologizing for my pains and struggles, and complimenting me about my strength.

This is the screenshot of how many people have visited my live space since I started it:

  • Note: Information may take some time to be listed.

Total page views: 131 Page views today: 8 Page views this week: 97

Page views within the last hour: 2

As you see above - 131 people are even more aware of RSD/CRPS then they were before. There are many more on Mitch's site that have commented and became aware.

Please if you feel it in your heart, please email this post, or send someone this way, just to read. All it takes to start is the word to be spoken, or written.

Always pain free hugs,

Christine

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Comments

  • 3/29/2008 2:46 PM Maria Mooney wrote:
    I'm not sure if I gave you my RSD blog before because I know I have come across your website before. Sorry if this is a repeat! I'd love to spread awareness too, and I'm trying my hardest through networking websites like facebook. Attempting to get my blog out there is another small attempt. I wish I could do more. Keep fighting!

    <3 Maria
    Reply to this
    1. 3/31/2008 2:42 PM Christine wrote:
      No sorries needed. I will check out your blog. I am thinking of starting a forum where I can list all the different websites I have found to support RSD and the people who suffer from RSD. Thank you for yours.

      Hugs,
      Christine

      Reply to this
  • 6/5/2008 10:25 PM jeisea wrote:
    Hi Christine. I think each thing we do on our blogs or posting comments on websites etc helps spread the word. In addition I am now emailing politicians and recently emailed one of our morning TV shows. I don't have a reply but will keep trying. Little by little we will all make a difference.
    jeisea
    Reply to this
    1. 6/6/2008 4:54 AM Christine wrote:
      I couldn't agree more. Even the little things we can do help in BIG ways.

      Thank you for stopping by
      -Christine

      Reply to this
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