Blog Talk Radio

I have found a wonderful site: www.BlogTalkRadio.com. If I had a microphone and the proper equipment to take calls I probably would be doing that also, or even instead of this. Sometimes typing hurts, that's why I don't post more than I already do. One particular show that I have enjoyed listening to is Coach Marla. Now Coach Marla is an RSD Coach. According to her website, http://www.awinninglifewithrsd.com/:

In October 2007 I was not only diagnosed again with RSD, but now they threw in Fibromyalgia,Osteoporosis and Multiple Sclerosis. And to be totally honest with you, I really don't give those much thought because frankly none of them can compare to RSD, so I have embraced it and have learned so much about myself, and am still learning things everyday, and I have LOVED what I have learned and what I continue to learn. And I look forward to helping you learn about yourself.

Marla has been diagnosed with RSD, MS, and Fibromyalgia, not all in that order. If someone knows pain, it would have to be her. She was recently fitted with a Spinal Cord Stimulator. She posted BlogTalks for the days during her trial. On the second day I was lucky enough to have gotten the chance to call into her show to discuss life with the Spinal Cord Stimulator. I have attached a link to the show and to her website and blog.

I feel that there is something each of us goes through when afflicted with unimaginable pain. That something is left in the air each of us knowing it's there, not saying a word. However, if we don't talk out loud and explain it, then people who don't suffer like we do won't ever know the depth of what we go through. They won't realize that our souls and hearts were once outgoing and full of life. That our minds were clear and our homes, bills, and children were well taken care of. That running around in the street playing Air Soft was the norm, not the exception. That hiking to a beautiful waterfall happened every year, until now. The fatigue and tiredness are not welcome by us, but despised, however, if we try to fight it, it wins.

An example of how I live my life happened on Friday: I took it easy for the day knowing the worst was yet to come. At 5:45pm my mom and I dropped off the boy at the field to get ready for his baseball game. From there we went to the pharmacy as she had some items to pick up. Amazingly I didn't. She drove the entire time. I wanted to make sure I would be able to handle that night. Realizing that my son didn't have water or a snack, late game, we pulled into Vine Ripe Market and proceeded to get out of the car. From the car to the shopping cart, my body decided to argue. We finished up, grabbing tangerines (my favorite), apples, and water, and headed back to the field. By this time I was hurting pretty badly. Since my mom was driving back, and I had a long night ahead of me, I took two of my Norco (10/325 hydrocodone). At the field, my mom pulled out my chair and pillow and we made it to the bleachers. We realized early on that the children and adults going up and down bleachers hurts, so no more. Sad to say though even the soft, comfy pillow in the chair still causes me to hurt.

It was an amazing game. My son made two of the points in the 18 point total. I am so proud, and so is he. Using this added exhilaration we followed all the team members, ours and opposite team, to Boll Weivels for an after game celebration. Boy did all the kids have fun. There were special chairs and tables set aside just for our team, but I couldn't sit there. So my mom and I went to a booth that was close by. We had dinner and just sat there. Lucky for me, I have a child that I say "You have 10 minutes" and my child says "ok." I say "no arguing when it's time to leave" and he says "do I ever?" We left early. The thing I missed out on: conversations with other parents of the children. My son had a blast and was able to play with many children from his team and the other team. It was great for him as I always need to leave practice and games quickly because I often hurt. So I "sucked it up" and now have been in bed for the last 2 days. It was worth it though to see the excitement and look on my sons face when his team won the game 18-7 and the flushed looked of running around with friends.

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