Afflicted with RSD/CRPS

The joys in a child

2009-10-26T16:21:34Z

Are wonderful…

My nephew has learned so much in the short time we have had him.

When he got here he said Wow and Tickle tickle (at 19 months he should have said much more). Now he says:

Uh-oh, thank you, your welcome, choo choo, Ph Ph Ph (for please), aunty, the boys name, he throws out his hands for I don’t know and where is it (he), bye bye, I love you, hi, and sprout

There are more, but it’s so wonderful to see him grow so much in this short time.

He also now gives hugs and kisses. He runs up to people just to hug them and kiss them.

We went to a pumpkin patch and he was giving the animals hugs it was adorable. He has hugged a stuffed animal for the first time recently too.

We believe that he was suffering from “Failure to Thrive” –http://www.webmd.com/parenting/tc/child-maltreatment-symptoms

Failure to thrive, which is when a child's growth pattern is not in a healthy range. Both weight and height can be affected, but low weight for height and head circumference is the most common symptom. Most cases of failure to thrive are the result of problems with the immediate care of the child, the interaction between the child and the caregiver (usually the mother), or the social and emotional health of the caregiver.

Very happy now to see this child who will be 2 (in Feb) becoming a strong responsive individual.

Food and keeping track

2009-10-26T15:32:34Z

How easy is it to get off track when you don’t monitor what you eat? VERY.

I am going to start tracking again. I have noticed that if I don’t then I cannot accurately gauge what goes into my mouth on a daily basis.

I want to keep this weight off and lose more and I can’t do it if I don’t keep track.

So where have I been?

2009-09-17T19:01:09Z

I was gone for 2 days to Yuma, AZ – We accomplished what we set out to do, which was get my nephew out of the system and into our stable home.

So now we are back into being caregivers of an 18 month old. The first thing we are doing is figuring out his schedule.

Last night, due to getting home and having to get settled, we got him into the bath by 8pm and into bed by 8:45pm. We are hoping to change that time to bath at 7:30pm and bed by 8-8:15pm. That way we get to spend the last hour and a half with our son by himself.

Then the baby was up at 7am. Which is perfect because due to the fact that I have been working on changing my sleeping habits and putting myself to bed at a decent time and getting up at 7am every morning, then it worked out well.

Nap time today was at 10:45am. I think it’s a bit early, but he might take 2 naps??? We’ll find out. But if not, that is fine.

The wedding is this Sunday. I am really excited (even more so than before) because I wasn’t going to be able to have some family members there, and now I get to. It’s wonderful.

Final preparations are being made and taken care of. YEAH!

STRESSED?!? ME STRESSED???

2009-09-14T23:11:16Z

Okay so yeah I guess I am stressed out. Why?

1. Wedding is Sunday and I am having to work with every one’s schedules to be here by a certain time and to be there by a certain time.

2. My b-i-l is having major issues in another state and I am helping as much as I can by phone. (I’ve known him since he was 10 and he really is my brother, not just b-i-l)

3. There is a possibility that we will be temporarily watching his 2 1/2 year old, so we will need to baby proof our ENTIRE home – Not quite stressing on this item yet as I try not to stress over things that haven’t happened. Plus there is the chance it won’t happen. We’ll see.

4. I have another meeting with the business counselor on the 28th and must have my Market Research done and sent to him by the 25th so that we may review it for functionality.

5. School starts October 12th.

6. Oh and it’s that time of the month HAHAHAHAHAHAHAHAHAHAHAHA

So this is my life on this day. It’s still a great day and a great life as I am marrying the man I so wonderfully love. (And he is willing to deal with all this drama with me without getting too mad if I snap at him)

Working Out

2009-09-14T06:57:09Z

So my workout schedule includes Saturday’s but in light of family events I was not able to workout. Sunday’s are my days off, but at 10pm I felt like I was cheating myself by not working out. So I popped in a DVD: Jillian Michael’s 30 Day Shred and got moving.

Now, this DVD is no joke. I have been working out steadily since July and I can say that parts of this DVD kicked my butt.

Apparently you do 10 days at Level 1, then 10 days at Level 2, and then 10 days at Level 3 (final level – as the name fits: 30 day shred).

So maybe I will include this DVD on various days, just to throw in a mix of things.

Fixing my site and new post

2009-06-29T02:12:00Z

I have changed the blog location to blog.afflictedwithrsd.com - Please update your bookmarks with the new info. Also, there is a new post on the blog.

I have changed my website too, but that will not be up yet. It will still be reached by going to AfflictedWithRSD.com

Hugs and thanks everyone.
...

Followup on Caregiver Sites

2009-05-11T05:03:46Z

I recently received a comment from Tigerlily about her Caregiver website.
She too was on the lookout for sites relating to caregiving and was not able
to find what she needed. So she started her own.

Here is her website information:

http://caregiverscove.org

As always I only pass this information on because I feel it's important to.
You must choose for yourself if the information you find is relevant to your
needs. I can only pray that you find what you need on the various sites that
I have given.

Always pain free hugs,
Christine

http://afflictedwithrsd.com
http://blog.christineleiendecker.com

Sex and RSD/CRPS

2009-05-02T22:59:56Z

How can an act that feels so good, Cause a flare that feels so bad?

How do you handle it? Have you given up the act all together? I refuse. I
have given up so much for this pain (hiking, tent camping, etc) I cannot
give up something that deepens our connection to each other.

Let's just say that last night the pain started, no sleep, and has continued
into today. Hopefully the flare won't last too long.

Always pain free hugs,
Christine

http://afflictedwithrsd.com
http://blog.christineleiendecker.com

Search for a Cure
www.rsds.org
www.rsdhope.org

Study Finds That Rents for Modest Studio and 1-Bedroom Housing Units Are Higher Than Monthly Income or People With Disabilities

2009-04-30T18:32:38Z

Thought this might be interesting to some of you. Email was received from
RSDS.org - Also, the links don't work. Just copy and paste them into the URL
address bar to open the links.

Hope all are doing okay. It's getting warmer, then colder, then warm again -
I am doing as well as I can in spite of the weather :)

*Study Finds That Rents for Modest Studio and 1-Bedroom Housing Units
Are Higher Than Monthly Income or People With Disabilities*

*FOR IMMEDIATE RELEASE*
April 13, 2009
1:43 PM

*CONTACT: National Low Income Housing Coalition

*Taylor Materio, Communications Associate
taylor@nlihc.org
Ph. 202-662-1530 x. 227
Study Finds That Rents for Modest Studio and 1-Bedroom Housing Units Are
Higher Than Monthly Income or People With Disabilities TAC and CCD Housing
Task Force release new study documenting extreme housing affordability
crisis for the most vulnerable people with disabilities

WASHINGTON-April 13, 2009-Across the United States in 2008, people with
disabilities with the lowest incomes faced an extreme housing affordability
crisis as rents for moderately priced studio and one-bedroom apartments
soared above their entire monthly income. The national average rent for a
one-bedroom unit climbed to $749 per month in 2008-higher than $667, the
average monthly income of over 4 million people with disabilities.

These shocking statistics are some of the important findings included
in *Priced
Out in 2008*-a study of the severe housing affordability problems of people
with disabilities who must survive on incomes far below the federal poverty
line. The study compares the federal Supplemental Security Income (SSI)
payments of people with serious and long-term disabilities to U.S.
Department of Housing and Urban Development (HUD) Fair Market Rents for
modestly priced rental units. *Priced Out* is published every two years by
the Technical Assistance Collaborative (TAC) and the Consortium for Citizens
with Disabilities (CCD) Housing Task Force to shine a spotlight on our
nation's most compelling - and least understood-housing affordability
crisis.

In 2008, 219 housing market areas across 41 states had modest one-bedroom
rents that exceeded 100 percent of monthly SSI, including 25 communities
with rents over 150 percent. Between 2006-2008, the number of market areas
with modest rents higher than SSI rose from 164 to 219-a 34 percent
increase. For the first time, there were 3 housing market areas - Honolulu
(HI), Columbia City (MD), and Nantucket County (MA)-where SSI recipients
needed to spend over 200 percent of their income for a modest 1-bedroom
housing unit-not only an impossibility, but absurd.

Perhaps the most shocking revelation in *Priced Out in 2008* is the
precipitous and relentless decline in housing affordability for SSI
recipients since 1998 when the first edition of *Priced Out* was developed.
The amount of monthly SSI income needed to rent a modest one-bedroom unit
has risen an astonishing 62 percent from 69 percent of SSI in 1998 to 112.1
percent of SSI in 2008. The root cause of the nation's most severe-and most
hidden-housing crisis is clearly revealed in the painful statistics included
in the 2008 edition of *Priced Out*.

As stated by Congressman Barney Frank in the Foreword to *Priced Out*, "The
lack of adequate housing is a serious obstacle to a decent life for anyone.
It can be particularly troublesome for people dealing with disabilities, for
whom the physical and emotional stress of a lack of decent shelter are added
burdens for people already doing their best to deal with difficulty."

Discretionary state SSI supplements provided by states are *not* the
solution to the housing affordability problems experienced by people with
disabilities living on SSI payments. Even in the State of Alaska-which had
the highest state SSI supplement in 2008 of $362 and a total monthly SSI
payment of $999-people with disabilities receiving SSI still needed to pay
80.6 percent of their monthly income to rent a modest one-bedroom unit.

While some progress has been made by Federal officials responding to
creating additional affordable housing resources, a bolder action is
essential to inaugurate a new era in housing policy that places the housing
needs of people with disabilities within the mainstream of national housing
policy. TAC and the CCD Housing Task Force urge the federal government to
take the following actions:

- Enact Section 811 legislation that will create at least 5,000 new units
of permanent supportive housing each year.
- Provide 10,000 new Housing Choice Vouchers for People with Disabilities
in HUD's annual budget.
- Support the Administration's proposal to appropriate at least $1
billion in funding for the National Affordable Housing Trust Fund.
- Remove Barriers to Permanent Supportive Housing in the LIHTC Program.
- Facilitate a Coordinated Disability Housing Policy Across the Federal
Government.
- Reinvigorate Fair Housing Enforcement.

By implementing these recommendations, the federal government will send a
powerful message of inclusion to state and local communities, along with the
housing resources necessary to finally begin to achieve the vision of
community integration for people with disabilities first articulated almost
20 years ago through the ADA.

A copy of *Priced Out in 2008 *can be found online at *
http://www.tacinc.org/pubs/pricedout/2008.html
*. For more information about *Priced Out*, please contact Emily Cooper at
ecooper@tacinc.org or (617) 266-5657 x123.
The National Low Income Housing Coalition is dedicated solely to ending
America's affordable housing crisis. Established in 1974 by Cushing N.
Dolbeare, NLIHC educates, organizes and advocates to ensure decent,
affordable housing within healthy neighborhoods for everyone. NLIHC provides
up-to-date information, formulates policy and educates the public on housing
needs and the strategies for solutions.

http://rsds.org/5/news/2009/April/NLIHC_30_178.html

*This E-alert was made possible by the contribution of the members of the
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA). To learn more
about becoming a member of RSDSA, please click
here.
* *RSDSA Privacy
Policy
* *RSDSA Home
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2009 Achilles Walk for Hope & Possibility

2009-04-23T20:53:33Z

*RSDSA at the 2009 Achilles Walk for Hope & Possibility in NYC*
*June 28, 2009 | Central Park
**Online Registration and Forms are now available!
*
* *
Walker and Virtual Walker Registration Available

*Click here for more
information
*
* Team **Co-captains: Jackie Drake and Marsha Tyszler*
Since RSDSA promotes public and professional awareness of CRPS, a neurologic
syndrome characterized by severe and persistent pain that can lead to
disability, we are charged with educating those afflicted with the syndrome,
their families, friends, insurance and healthcare providers about the
potentially-disabling pain it causes.

We have teams in the Achilles Walk for Hope & Possibility to promote
awareness and encourage support for people with CRPS and their family and
friends. Our participation highlights the disabling part of the syndrome and
offers hope to those who suffer from it.

You can participate in the walk and raise pledges, or put together a
corporate team. Perhaps your company has a matching funds arrangement for
not-for-profit fundraising events. Visit the website or contact us to get
started!

http://rsds.org/4/awareness/Achilles/2009/nyc.html

* *
*This E-alert was made possible by the contribution of the members of the
Reflex Sympathetic Dystrophy Syndrome Association (RSDSA). To learn more
about becoming a member of RSDSA, please click
here.
* *RSDSA Privacy
Policy
* *RSDSA Home
Page
*

RSDSA | 99 Cherry St. | Milford | CT | 06460

A Note from David C Barold MD APC (Email received)

2009-04-23T20:13:36Z

I had the opportunity to attend this seminar once and am intrigued by the
process/treatment. I plan on having it done and will let everyone know about
my experience afterward.

*CHRONIC PAIN / SPORTS INJURIES*
Breakthrough Advancements for the treatment of Pain

David Barold, MD Board Certified Internist will speak at CLUB LA JOLLA on
the revolutionary advancements being made in the field of pain management.
High Power Laser Therapy (HPLT) has already helped thousands of people get
long term relief WITHOUT drugs, needles, side effects, pain or surgery.

If you are experiencing difficulty with:
Â· Back pain / Sciatica
Â· Neck and shoulder pain
Â· Arthritis / Fibromyalgia
Â· Carpal Tunnel Syndromes
Â· Sports Injuries
Â· TMJ
Â· Peripheral Neuropathy
Â· Non-healing wounds
Â· Failed surgical syndromes Â· Foot pain / Knee pain / Hip pain
Â· Muscle sprains, strains and tears
Â· Ligament sprains, strains and tears
Â· Tendon sprains, strains and tears
Â· Rotator Cuff injuries
Â· Stress Fractures
Â· Tendonitis
Â· Bursitis
Â· Shin Splints

*[image: Club La Jolla]

*

Saturday, May 16th, 2009 at 12pm
Club La Jolla
7580 Fay Ave. (across from Vons)
La Jolla, CA 92037

*RSVP: 858-454-7007 *
Cost: FREE
*Please visit our new website at
www.doctorbarold.com
*

David C Barold MD APC | 3990 Old Town Ave. Ste. A-109 | San Diego | CA |
92110

Fwd: Triumph Over Pain 5K Email from Randy Blancq

2009-04-22T22:43:40Z

Hello Everyone,

It is Randy Blancq from the Quench the Fire Run. A lady from McKinney, TX
with RSD has flown out from Texas to be at each of our first two Quench the
Fire runs. She posted a summary of our first year's run at the RSDSA
website and she has raised money for our run. After our last run, she went
home and created her own run which will take place on May 16th in Texas.
Mom, my girlfriend and I will be heading out to the run to show our support
of Tricia and to support the RSD cause. The funds from the run all go to
RSDSA for research and education. As she did for our run this year, I have
created a fundraising page to support her efforts. I invite any of you to
donate to the run via my fundraising page here:

http://www.active.com/donate/Triumphoverpain/randyqtf

Please consider donating to my page. We who are affected by RSD in some way
(those afflicted and those who help care for them) need to continue to fight
and grow our efforts. Our mission must be constant and our support
unwavering. There are only a handful of RSD events throughout the year that
take place in different parts of the country. Each should be supported in
whatever way possible so that we can continue to address the needs of those
with RSD. We cannot let our message or our efforts just fade away. Our
support cannot be a one time thing. Together we will make strides towards
effective treatments or a cure.

If anyone has ties to New York, you can also support Marsha Tyszler as she
walks in the Achilles Walk for Hope and Possibility in Central Park on June
28th. She will be co-chairing and participating for Team RSD. Again, the
money will go to RSDSA. You can get to her fundraising page here:

http://www.firstgiving.com/marshatyszler2009

Thanks everyone!!!

Dream Big,
Randy

Attention Connecticut members: May Tag Sale will benefit RSDSA

2009-04-22T19:23:50Z

http://www.rsds.org/1/events/TagSale.jpg

Charity Tag Sale
Saturday, May 23
Sunday, May 24
9:00 AM to 3:00 PM
2410 Main Street
Stratford Center
Stratford, Connecticut
Proceeds will support the Reflex Sympathetic Dystrophy Syndrome
Association’s (RSDSA) mission of promoting greater awareness, funding
research, and supporting individuals with complex regional pain syndrome
(CRPS) and their caregivers. (www.rsds.org)
Donations may be dropped off at 1344 East Main Street in Stratford.
Prior to dropping off materials, please call 203-377-1265.

Washington Post: Drugmakers Ease Eligibility for Discounts (repost from RSDS.org)

2009-04-14T22:39:00Z

Drugmakers Ease Eligibility for Discounts
By Francesca Lunzer Kritz

Washington Post

In this tough economy, a few drug companies are broadening their programs that help people struggling to pay for prescription drugs.

-- Last month, Merck, whose drugs include Januvia for diabetes and Singulair for asthma, increased the income eligibility of its assistance plan to 400 percent of the federal poverty level, from its previous 200 percent level.

This means that patients in the contiguous United States qualify if they have an annual household income of $43,320 or less for individuals, $58,280 or less for couples, or $88,200 or less for a family of four, even if the financial situation is temporary.

-- Abbott launched a program to help pay for its injectable autoimmune disease drug, Humira. Even many people with insurance coverage will not have to pay more than about $5 per month for the drug, according to the company.

Information: 800-448-6472.

-- Together Rx Access recently eased the income rules for its discount drug card. Eligibility now starts at $45,000 a year for a single person (up from $30,000) and runs up to $105,000 for a family of five (up from $70,000).

The free card, whose sponsors include Pfizer and Novartis, is designed to benefit legal U.S. residents without public or private prescription coverage who don't qualify for Medicare. Discounts on more than 300 drugs average 25 to 40 percent, according to Christopher Loder, a spokesman for Pfizer.

Information: http://www.togetherrxaccess.com or 800-444-4106.

-- Rx Outreach has added more than 100 drugs to the nearly 300 generics that it will provide for anyone with a U.S. address whose income is no greater than 300 percent of the federal poverty level. (That's $32,490 for an individual, $66,150 for a family of four.)

Information: http://www.rxoutreach.com or 800-769-3880.

Jeff Trewhitt, a spokesman for the pharmaceutical trade association PhRMA, says that because companies are reevaluating their programs, it is worth checking your eligibility even if your income level kept you from getting assistance previously.

For information on all drug company assistance programs, as well as some offered by patient organizations such as the Arthritis Foundation, check these two clearinghouses:

RxAssist (http://www.rxassist.org or 401-729-3284), which is sponsored by several organizations, including drug companies, and the Partnership for Prescription Assistance (http://www.pparx.org or 888-477-2669), which is sponsored by PhRMA. Both list many of the same programs.

http://rsds.org/5/news/2009/April/WashingtonPost_9_176.html

My main website

2009-03-13T03:54:00Z

My website should be back up after the 18th of this month - However, it can still be reached through my name christineleiendecker.com - You can still view everything on it through that web address.

Hugs.
...

Checking in...

2009-03-02T02:49:00Z

FUNDRAISER REMINDER!!!
I would like to help get the word out about another great event helping to support those of us who suffer from Reflex Sympathetic Dystrophy, aka, Complex Regional Pain Syndrome.

The event takes place:

Triumph Over Pain
5K Run/Walk/Roll |
McKinney, TX, 75070 |
May 16, 2009

Please help me spread the word about this event. If you have any questions feel free to contact me and I can direct them on to Tricia or contact Tricia directly, her email address is below.

http://www.triumphoverpain.org/

This is me checking in. What have I been doing? Not too much. The weather is getting warm again. San Diego it's almost always warm, except for this winter - blah. With the warm weather comes more outdoor time. You know the sun is good for you, right? LOL - It feels good to be out there. It's also garden time. We have had lettuce growing for the last couple of months and are plucking off leaves, washing them and then drying them. They come off bitter but we put them in the fridge for 2 days wrapped in saran wrap and it's not bitter anymore.

Hubby and I had some pictures taken by a friend. I will post one below. We haven't done pictures in a very long time. (Hopefully it fits on the screen okay)

Pain wise I am fighting, hard. I want to garden, so I do. I want to be outside, so I am. In fact, today is the first time I have been online all weekend. I feel that the only extreme suffering I have done is strictly related to the friendships I have made online. So understand my friends, I think about you and pray for your well being and hopefully low pain days.

On another note: At one point I was told I need to give up the crusade I am on with regards to spreading awareness about RSD. I need to respond to this. I feel that I would not be where I am today if not for my crusade. I am apart of RSD/CRPS groups and my heart goes out to the MANY MANY people who are NOT where I am, they are MUCH WORSE. Had they received the treatments and help from the VERY BEGINNING, like I was blessed to have gotten, then maybe they would be better off. That right there is the reason for my crusade. If you are to come across my blog and see what I have been through and are benefited by it, then I have succeeded in my crusade. If you are new to RSD/CRPS and can take my experiences and use them to your benefit, then I have succeeded. If I have, or receive, information that I feel should be passed on, then that is what I am going to do. If you benefit from the information, wonderful, if not, then hopefully the next piece of information I submit will be beneficial. But I refuse to stop.

Caring for the Caregiver (passing on an email from APF)

2009-02-12T00:24:00Z

CHAT ANNOUNCEMENT

Forward to a Friend

Caring for the Caregiver

Online chat with Kris Robinson PhD, FNPbc, RN

Interim Assistant Dean, Graduate Program and Associate Professor,
School of Nursing at the University of Texas
American Pain Foundation Power Over Pain Action Network Leader - Texas

Tuesday, February 17th at 8:00p.m. ET

LIMITED SPACE - MAKE YOUR RESERVATION TODAY!!

Please join Kris Robinson PhD, FNPbc, RN and the American Pain Foundation’s PainAid Community for this Live On-Line Chat about the role of caregivers and the importance of self care on Tuesday, February 17, 2009 at 8:00p.m. ET. In addition to her professional expertise, Kris is also a caregiver for her husband who has chronic pain.

Kris Robinson is a doctoral-prepared nurse educator, clinician and researcher. Her research interest focuses on health disparities that occur as a result of chronic pain experience of Hispanics of Mexican American descent and their families; and, ultimately interventions to increase quality of life and optimum functioning in this population. She is currently the Assistant Dean for Graduate Education at the University of Texas at El Paso School of Nursing.

She has been a POPAN advocate for the past two years and is able to intertwine her community service, teaching and clinical practice with advocacy activities. She has published articles in the local paper and has been a guest several times on the University radio station KTEP. She is active in providing pain management information in Spanish and English at local health fairs. Dr. Robinson is an associate professor of nursing and a family nurse practitioner. To maintain clinical skills, she volunteers part-time in a pain management clinic with Dr. Jose Monsivais at the Hand and Microsurgery Center of El Paso.

There is limited space for this chat, so please go to the Military/Veteran Section of PainAid (corrected link) for reservation instructions. If you do not already have a login name and password for PainAid, please click here first to register for access to PainAid. If you have previously registered with PainAid and have forgotten your password,

click here. If you have difficulty accessing PainAid or have any questions, please email Chats@painfoundation.org for assistance.

Petition for RSD Awareness Day

2009-02-10T20:20:00Z

http://www.neurologychannel.com/RSDawareness/index.shtml

Petition for RSD Awareness Day

Healthcommunities.com, publisher of neurologychannel is hosting a petition to raise awareness for RSD and advocate for a Nationally Recognized Reflex Sympathetic Dystrophy (RSD) Awareness Day.

Goal

Create a National Health Observance Day to raise public awareness for the millions of people and their loved ones who are affected by RSD.

Description

Reflex sympathetic dystrophy (RSD) or complex regional pain syndrome (CRPS), is a chronic, painful, and progressive neurological condition that affects skin, muscles, joints, and bones. The syndrome usually develops in an injured limb, such as a broken leg, or following surgery. However, many cases of RSD involve only a minor injury, such as a sprain. And in some cases, no precipitating event can be identified.

Millions of people in the United States may suffer from this chronic pain syndrome. RSD/CRPS affects both men and women, and also occurs in children.

RSD/CRPS can be difficult to diagnose and often requires excluding other conditions that produce similar symptoms.

RSD/CRPS patients often become depressed and anxious because of chronic pain and loss of physical ability.

For more information on Reflex Sympathetic Dystrophy (RSD/CRPS), please visit http://www.neurologychannel.com/rsd/index.shtml

To read stories submitted by others affected by RSD visit, http://livingwith.neurologychannel.com/rsd/

Sign the Petition to Congress

To help promote our efforts and advocate for an RSD Awareness Day, please fill out the following form. The petition is open to U.S. residents 18 and older. All fields are required to act as your digital signature.

First Name:

Last Name:

Street address:

City:

State:

ZIP code:

E-mail address:

Sign the petition
The information you provide here is intended for this petition only. We will pass the information along to Congress. Healthcommunities.com, Inc. will not use the information for any commercial or other purpose. However, Healthcommunities.com, Inc. cannot be responsible for the use of this information by Congress.

Have you been diagnosed with a condition?	Yes No

Are you receiving treatment?	Yes No

What is the most important health topic to you?

Age:

Gender:	Female Male

By clicking "Submit" I certify that I am a resident of the United States over the age of 18.

Privacy Statement

http://www.neurologychannel.com/RSDawareness/index.shtml

Bone Scans and other Visual Signs of RSD

2009-02-06T09:54:00Z

A question recently came up about Bone Scans and if they can "prove" you have RSD/CRPS. The honest answer is not always and not with every person - It's basically just like any and all other tests with RSD - the ONLY proven factor is PAIN. Sucks doesn't it?

Here are some links I have found about bone scans.

http://www.wheelessonline.com/ortho/rsd_role_of_bone_scans

http://www.rsdalert.co.uk/treatments/Bone-Scan.htm

http://www.healthboards.com/boards/archive/index.php/t-420925.html

http://robertgschwartz.homestead.com/page8.html

Now other visual signs. Digital Infrared Thermal Imaging (DITI) is a totally non-invasive clinical imaging procedure for detecting and monitoring a number of diseases and physical injuries, by showing the thermal abnormalities present in the body. Please see the following links with more information on them.

http://eternalhealthclinic.org/diti.aspx

http://eternalhealthclinic.org/pain.aspx

Whether your pain is "Acute" or "Chronic", DITI can help you, and your healthcare professional to safely get you back to better health.

Eternal Health Clinic is providing the answers in the diagnosis of pain and unlike most diagnostic test D.I.T.I. is:

Non Invasive
No Radiation
Painless
No Contact With The Body
No Risks or Side Effects
F.D.A Approved
Digital Infrared Thermal Imaging is used in Sports Medicine and Musculoskeletal Disorders.

http://www.cvdinc.org

http://www.medithermclinic.com/RSD/RSD.htm

SPREAD THE WORD:
Also: Please remember that there is an event going on in Texas to raise awareness and money towards research for Reflex Sympathetic Dystrophy, aka, Complex Regional Pain Syndrome:

Triumph Over Pain 5K Run/Walk/Roll

Saturday, May 16, 2009, 08:30 AM
Cooper Fitness Center @ Craig Ranch
7910 Collin McKinney Pkwy
McKinney, TX 75070

http://www.triumphoverpain.org/

Triumph Over Pain

OUR MISSION: To provide awareness and education about Reflex Sympathetic Dystrophy Syndrome (RSD) in a positive environment.

We are looking for members. I encourage you to join us as we continue to spread the word about RSD. We are determined to help health care providers better understand RSD.

Your stories, questions, and comments are always welcome.

Triumph Over Pain
P.O. Box 1693
Frisco, TX 75034

tricia@triumphoverpain.org

Register now for the TOP 5K event !

Donations are always welcome !

Caregivers and websites for Caregivers

2009-02-03T17:46:00Z

Where would you be without your Caregiver? I would be lost, homeless, and possibly even dead. RSD plays such havoc on us and our lives that without the people who support us and take care of us we would be in a "not so nice place." However, upon speaking with new RSD sufferers and their caregivers I realized that there aren't enough options out there for Caregivers. So I am calling on everyone who reads my blog:

WHERE DO THE CAREGIVER'S GO? Please post in the comments if you have links to sites that offer an outlet for Caregiver's. I am taking all suggestions and putting them in a blog and on my website under the "Additional Support" section. So please let the information overload my computer.

Hugs and low pain days.

Just a reminder about the upcoming event to support research for Reflex Sympathetic Dystrophy, aka, Complex Regional Pain Syndrome.

The event takes place:

http://www.triumphoverpain.org/

Triumph Over Pain

OUR MISSION: To provide awareness and education about Reflex Sympathetic Dystrophy Syndrome (RSD) in a positive environment.

We are looking for members. I encourage you to join us as we continue to spread the word about RSD. We are determined to help health care providers better understand RSD.

Your stories, questions, and comments are always welcome.

Triumph Over Pain
P.O. Box 1693
Frisco, TX 75034

tricia@triumphoverpain.org
Register now for the TOP 5K event !

Donations are always welcome !

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